Meet Jacob, a beautiful little boy. Jacob's Mum tells his story...
"Jacob has a very rare condition known as Gm1 Gangliosidosis, type 1. It is the most debilitating form of the degenerative condition and results from genetic coding not allowing for production of beta-galactosidase enzyme essential for neurological functioning. As time goes by, the organs in the body start to fail."
"Jacob was only diagnosed on the 21st of august, he is currently on epilepsy medications to control his fits. There is no treatment or cure for Jacob. His life expectancy is 2 years. He is 16 months."
"Jacob loves spending time with his parents, going to different activities. He also loves spending time in his own sensory corner that his mummy built for him at home. Jacob needs to be kept confortable, so he does spend his day cuddling with his mummy, going for walk in his buggy. His favourite thing is his sensory bubble light."
"It does mean the world to us having these photographs as it is a lasting memory of 3 of us together"
Keywords: Butterfly Wishes Network, Gm1 Gangliosidosis, butterfly wishes network, children with life limiting illness, lets make memories, photographers providing families with memories, volunteer photographers, volunteer photography
Your love is forever on this Earth, Jacob. Your beautiful spirit will follow your mum and dad forever. Rest now, little angel. Be free and at peace.
Jacob has passed on. More people are looking at these pictures and this write up again.
Once again - well done, I think this is a wonderful idea.
Aww, he is so beautiful, and these images are so precious. Bless! x
Stunning Leandri x
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