Arabella

June 08, 2014  •  3 Comments

Meet the gorgeous Arabella...

Arabella is Veronika & Mike's first born, at around 8 weeks old Mummy and Daddy started noticing Arabella making strange movements, at the time they were unaware that Arabella was poorly, the movements were later recognised as early infantile spasms. At the time the family were moving from Aberdeen to Edinburgh and they are very thankful to the staff at Edinburgh's Sick Children's  Hospital who provide the best care possible to Arabella.

 

It was there that the family learned that her condition called Ohtahara Syndrome which is a very rare, extremely severe form of epilepsy. Mummy and Daddy were told she most likely wouldn't even leave the hospital. Two years on she has defied everybody's expectations and continues to be a very happy little girl. She can't stand, sit unaided or even hold her own head, due to the seizures, it is unknown how much she can see and she has seizures that can vary from little eye-flickers to full body jerks, but a smile is never far from her lips!!

 

Arabella  vocalises a lot in her own little language which she now shares with her little brother Korben who was born earlier this year, she is clearly aware of the recent changes in the family, she listens to her brother's crying and "talks " to him if mummy and daddy  lay them next to one another they have a beautiful bond.  

We would like to say a big thank you to Rachael of Beautiful Bairns who captured this beautiful family.

 


Comments

3.Mrs Akhtar(non-registered)
Beautiful pictures xXx
Reminds me of my daughter which has a different condition, but the affects of the condition is similar or very much alike.
2.Linda Heath(non-registered)
Ahh she is adorable and the family photos are beautiful xXx
1.debbie(non-registered)
Beautiful photos of a beautiful girl and her family.
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