James' Story

February 07, 2014  •  Leave a Comment

James was diagnosed with a rare severe congenital heart defect in pregnancy. He has PA-VSD, ASD and CAF. (Pulmonary atresia, ventricular septal defect, atrial septal defect and just recently coronary arterial fistular.

James spent over 2 months of his short life in hospital fighting his battle and had emergency open heart surgery followed by other surgeries. James is on a palliative care pathway and takes medication daily to prevent his heart failing.

James has a beautiful big sister who has been amazing through everything we have been through as a family.

A massive thank you to Jess Petrie from http://jesspetrie.com/ for the beautiful photographs.


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