Isabel was only 4 weeks old when we got the awful news that she had Cystic Fibrosis.
Cystic Fibrosis causes her to have a build up of thick mucus in her lungs which she is unable to discard herself, unlike any person without CF. CF also affects the pancreas, which means hers isn’t able to break food down and digest her food properly.
Isabel has to have regular visits to hospital, at the moment it is roughly every 4-5 wks. In these visits they weigh her and check around her stomach and listen to her chest (front and back). They also take cough swabs to check for infections and do her oxygen levels. We talk to Isabel’s dietician about the food she eats and the amount of creon needed before each feed. As well as hospital visits, Isabel has to have physio twice a day, this helps/prevent the build up of thick mucus that she can't move. She also has to have antibiotics twice a day and two lots of vitamins once a day. Also before each feed she has to have some creon which varies in the amount as to what she is eating as creon acts as her enzymes which helps break her food down.
She loves playing chasing games with her brother - lots of giggles from her while doing this her toy phone goes all over with her. She also likes playing with some wooden stacking shapes which belong to her brother.
Isabel also loves playing with our pet dog, and follows him round everywhere shouting his name (jack), which has also made her fascinated with character dogs on programs especially Wags the dog on the Wiggles.
Thanks to Christy Bailey at https://www.facebook.com/CBaileyPhotography for the beautiful images.