Evie, the beautiful daughter of Aimey and James, was born on 18th January 2012 at 7.27am in Kingston Hospital. Evelyn’s arrival into this world was incredibly distressing. Evelyn was born with the cord round her neck twice and during the final stages of labour, Evelyn suffered significant trauma and subsequently suffocated. For the first 3 days of her new life, Evelyn was “cooled” through a procedure called ‘Therapeutic hypothermia’. This treatment involved lowering her body temperature to 32-34°C while unconscious, using a blanket or mattress filled with air or fluid. The purpose of this treatment was to cool Evie’s developing brain and slow down the rate of cell damage. Following this, Evie endured MRI scans and these revealed that she has Severe Hypoxic damage (significant brain damage in many areas).
On Tuesday the 7th February, whilst coming to terms with this devastating news, Aimey and James were hit with another huge blow. Their beautiful baby girl was found to have Retinoblastoma in both eyes. The family were consequently rushed to the London Hospital. Treatment for Retinoblastoma left Aimey and James with no other choice but for their precious little girl to undergo vigorous Chemotherapy at Great Ormond Street. She will need 6 sessions with the hope that the tumours will shrink and they may be able to save some of her sight.
With current diagnoses of Cerebral Palsy, a movement disorder as well as Retinoblastoma, learning basic life skills including the simple concept of controlled movement, will be a huge challenge for Evie. She will continue to require high levels of specialist support for the future. This will include appointments with Occupational Therapists, Physiotherapists, Speech and language Therapists, Specialist Nurse support and Specialist Education provision to name a few. The list is endless.
Ali, photographer and one of the founders of the Butterfly Wishes Network was privileged to do the shoot for the network. "I was a little nervous as this was my first shoot for the Butterflies. The family put me at ease straight away and you could feel the love between them is so strong. Evie is such an amazing little girl and her parents are doing a fabulous job doing everything they can for her. It was an honour to take their photos."
Please check out Evie's Page at http://www.enablingevie.co.uk/ and show her some support.
aww that gorgeous smile just melted my heart :) praying you get the good news you are hoping for and that they can save as much of her sight as possible;evie is blessed to have such wonderful parents and you are blessed to have such a beautiful baby girl x
I have the pleasure of knowing Evie's grandparents who are also the kindest most caring people you could ever meet. I haven't had the pleasure of meeting aimey, James and the beautiful Evie but I hope to very soon. The photos show quite clearly how happy they have made their daughter no matter how hard this must be every single day for them and
I am sure that the strength shown by Evie throughout what she has already been through and with what she may have to come this little girl will continue to amaze everyone around her. Good luck Aimey James and Laura and Larry x Keep up the very good work that you are all doing xxxxx
These photographs are amazing, something we will cherish always. Thankyou so muchfrom Evies nanny Lorraine and grandad Barry. We have one of evie in a frame and and every morning we look at it and it makes us smile x
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