Brett's Story

August 18, 2013  •  Leave a Comment

Meet 6yr old Brett!

 

My gorgeous little boy Brett is the apple of my eye!

Brett has many medical interventions that have to be dealt with on a daily basis, including a gastrostomy feeding tube and a permanent colostomy bag, but he never fails to amaze me with his light up smiles and infectious giggles.

 

Since he was born in January 2007 he has undergone major operations including open heart surgery and bowel/stomach surgery as well as many minor surgeries too....

He's given me more than a few scares in his 6 years (time on life support when he stopped breathing, a blood clot in his heart, to name just a a few of the worrying times...) and he is a reminder of how fragile and precious life is, it's always about making the most of the times when Brett is well and trying to cram in as much fun and learning when he has his good spells.

 

Brett lives with me (mum) and his older brother Garry, he also has 2 older sisters who have flown the nest and family who love him very very much. He goes to special school and uses a wheelchair, and he has wonderful teachers and a physiotherapist who are working very hard to teach him his sitting balance - at the moment he can sit with support around his waist or in a special berilo chair.

Brett is a real people person and loves to interact with adults and children alike, and also loves his toys and DVD time. He goes swimming each week at school, and loves the feel of splashing in the warm water.

Probably the hardest part of coping with life as it is now is that Brett can't talk and tell me how he feels or what he's thinking, and not knowing what the future holds for him (he has a bowel condition that is always at risk of flaring up and can become critical very quickly) but the key is to enjoy the times when Brett's well and to never look too far ahead.

He's my very special boy and teaches us all so much about the important stuff in life. Love him to the moon and back....

Thanks to Butterfly photographer and administrator Maxine from https://www.facebook.com/pages/Maxine-Sarah-Photography/365593203458156 / http://maxinesarahphotography.com/ for the gorgeous memories.


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