This is Mikey, he was diagnosed at 7 years old with Pilocytic astrocytoma (brain tumour) Hydrocephalus & Forth nerve palsy. Mikey's Mum tells us his story:
So far he has had a de-bulk of tumour in December 2011, Shunt fitted in April 2012, Chemotherapy on going since November 2012
Mikey’s long term prognosis is unknown. His brain tumour is inoperable, therefore he will never be in remission from cancer, and also suffers from hydrocephalus (fluid on the brain), which is treated by a vp shunt, which is a life threatening condition also.
Mikey loves football, he would play it morning noon and night if he could! He enjoys making people smile, and loves to sing.Mikey suffers sickness in the mornings, but then on a good day with hardly any symptoms, he usually mananges a full day at school, coming home very tired and resting.
On a day with treatment mikey spends all day in hospital on chemotherapy. He also has days when problems with his shunt, keep him at home feeling very unwell. No two days are never the same for Mikey. Unfortunately life is very unpredictable.
It means being given a chance to capture happy moments that are so far and few between, they sometimes get forgotten. Having photos taken of us as a family, when Mikey is poorly and going through so much, will be a way of being able to remember positive and happy moments for us as a family, at a time when things often seem grey. It will be a fantastic way for us both and our children to look back and remember just how beautiful life is when we are together.
You can follow Mikey's journey on Facebook: Mikey's War
Keywords: Butterfly Wishes Network, Forth nerve palsy, Hydrocephalus, Mikey's War, Pilocytic astrocytoma, brain tumour, butterfly wishes network, children with life limiting illness, lets make memories, photographers providing families with memories, volunteer photographers, volunteer photography
All of the best
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