This is Santi, he was diagnosed with Pallister Killian syndrome at just 3 months old.
Santi has undergone corrective surgery for undescended testis and strangulated hernias as well as various hospital admissions for chest infections including ventilation on life support.
Music and singing, lights, hydro pool, cuddles and kisses are his favourite past times. Santi loves Woody and Buzz from Toy Story. Woody is his favourite talking buddy doll. Santi loves swimming and the sensory room.
Santi's Mum tell us these photographs are "such a magical gift. Always feel sad going past photographers studio knowing they cant meet our needs due to our sons limited mobility."
Keywords: Butterfly Wishes Network, Pallister Killian syndrome, butterfly wishes network, lets make memories, photographers providing families with memories, photographers providing families with memories, volunteer photographers