Jacob's Story

October 02, 2013  •  7 Comments

Meet Jacob, a beautiful little boy. Jacob's Mum tells his story...

"Jacob has a very rare condition known as Gm1 Gangliosidosis, type 1. It is the most debilitating form of the degenerative condition and results from genetic coding not allowing for production of beta-galactosidase enzyme essential for neurological functioning. As time goes by, the organs in the body start to fail."

"Jacob was only diagnosed on the 21st of august, he is currently on epilepsy medications to control his fits. There is no treatment or cure for Jacob. His life expectancy is 2 years. He is 16 months."

"Jacob loves spending time with his parents, going to different activities. He also loves spending time in his own sensory corner that his mummy built for him at home. Jacob needs to be kept confortable, so he does spend his day cuddling with his mummy, going for walk in his buggy. His favourite thing is his sensory bubble light."

"It does mean the world to us having these photographs as it is a lasting memory of 3 of us together"

Huge thanks to our approved photographer Leandri Perry Photography for taking such beautiful images. www.facebook.com/leandri.perry


Comments

Kirsty Jacobs(non-registered)
Your love is forever on this Earth, Jacob. Your beautiful spirit will follow your mum and dad forever. Rest now, little angel. Be free and at peace.
Grant(non-registered)
Jacob has passed on. More people are looking at these pictures and this write up again.
Once again - well done, I think this is a wonderful idea.
Blue White(non-registered)
Aww, he is so beautiful, and these images are so precious. Bless! x
Carli(non-registered)
Stunning Leandri x
Patsy Lea(non-registered)
These photos are so very beautiful, they made me cry.
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